The purpose of this website is for those with Myasthenia Gravis and other neuromuscular conditions to share stories of travel and positive experiences. The goal of inspiring and helping those with MG and other neuromuscular conditions to live their best lives.

My personal description of MG Myasthenia Gravis.
How I would describe MG as a Myasthenia Gravis patient.

Myasthenia Gravis is sometimes called the snowflake disease as every case is unique.

This is my description of my particular expression of Myasthenia Gravis. It’s like you burn gas without getting anywhere but here is the super tricky part of MG you never know how much fuel you have to work with.

Unlike MS (to my limited knowledge) with MG you can suddenly have failure of your respiratory muscles

  1. Muscle weakness – Feels Iike your muscles are like jello, or like you ran some sort of race and have nothing left like you could colapse at any moment.
  2. Respiratory weakness- to me it feels like a tightness right in the middle of my chest, sometimes painful.

Description of Myasthenia Gravis from NIH.GOV

https://www.ninds.nih.gov/health-information/disorders/myasthenia-gravis

Myasthenia gravis is a chronic autoimmune, neuromuscular disease that causes weakness in the skeletal muscles (the muscles that connect to your bones and contract to allow body movement in the arms and legs, and allow for breathing).

The hallmark of myasthenia gravis is muscle weakness that worsens after periods of activity and improves after periods of rest. Certain muscles are often (but not always) involved in the disorder such as those that control:

The onset of the disorder may be sudden, and symptoms may not be immediately recognized as myasthenia gravis. The degree of muscle weakness involved varies greatly among individuals. 

https://www.ninds.nih.gov/health-information/disorders/myasthenia-gravis


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